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Saturday, December 21, 2013

Reclaiming the Holiday Season

For many of us we are days away from one of the most important holidays of our year.  A time when we celebrate family, friends, and for many the birth of Jesus.  Yet, for us that have been sick for along time we do not find joy in the Christmas season.  We begin thinking of all the things we use to be able to do and what has been stripped by our illness.

We can reclaim Christmas, Kwanzaa, Hanukkah and many other Holidays.  we can do this in a few easy steps.  Remember reclaiming these important days will benefit your life.  It will let you go back to a sense of normalcy.  The fact is that when you give yourself the opportunity to enjoy something that you use to you will fill much better.


  1. Let your friends and family know that it isn't a day that is important rather the reason for the celebration.  By doing this you can pick and choose when to celebrate the day when  you are feeling well.
  2. On the big day don't over do it.  When you are tired rest.  When you feel good join everyone.  Remind your friends and family that you will enjoy and be able to participate more if you can do it based on your strength.
  3. Let others in the group do the big planning.  This can make you just as tired as actually being there for the holiday.  Rest up for the big day so you can still enjoy.
  4. Lastly, if the big day comes and you do not feel good don't be upset.  Do what you can and you will find that you still have saved the day.
For my fellow fighters keep on fighting and remember one day they will figure this out and we will have won.  Until then don't give up hope.  It is okay to rest on bad days,  but on the good days enjoy life to your fullest because you deserve it.    

There is so much more and remember this is something that I live with and am writing from my perspective.  Talk to a doctor if you feel you may have this or any other disease because without proper diagnosis you will never get the treatment you deserve. 

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